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Bascom Palmer Eye Institute

Costs of Participating in the LHON Study

If you are a patient with LHON and have no insurance, the study will pay all expenses involved in the study including genetic testing, clinical examination, and clinical testing.

If you are a patient with LHON and have insurance, your insurance will be billed for examination and testing that are considered standard of care, and the study will pay for examination and testing that are not considered standard of care. For the Initial visit, the cost for Genetic testing will be billed to your insurance provider. For the initial visit, 12 month visit, 24 month visit, 36 month visit, and 48 month visit, the cost for a routine eye examination, visual field testing, optic nerve photography, optical coherence tomography, will be billed to your insurance provider. You will be responsible for your own co-pay/deductible payments. For the 6 month visit, 18 month visit, 30 month visit, and 42 month visit, the study will pay all expenses involved for clinical examination and testing. The study will pay for the pattern electroretinogram for all visits. If your insurance refuses to pay for the clinical examination, genetic testing, and clinical testing billed as mentioned, the study will pay for the examinations and the testing refused by your insurance.

If you are a family member of a LHON patient, the study will pay all expenses involved in the study including genetic testing, clinical examination, and clinical testing. Your insurance will not be billed. Should you develop LHON, your insurance will be billed for examination and testing that are considered standard of care, and the study will pay for examination and testing that are not considered standard of care.